This
site includes information about traumatic brain injury as
it relates to the following: prevention, advocacy, education,
rehabilitation, and research. It is a helpful site for survivors,
family members, and professionals who support the TBI population.
From
the TN Dept. of Health site, go to Fact Sheets (under site directory)
then select "Traumatic Brain Injury" or Traumatic
Brain Injury to go there directly. A summary of the incidence
and prevalence for TBI is given, along with a synopsis of program
services.
This
technical assistance center was established as a resource for
states that are trying to establish or build upon services available
for individuals with TBI. The site features a list of TBI state
grant participants along with their grant objectives, a "toolbox"
of materials on developing and implementing TBI services, and
much more related information.
•
NATIONAL INFORMATION CENTER for CHILDREN and YOUTH WITH
DISABILITIES (NICHCY)
http://www.NICHCY.org
Voice/TTY: 800.695.0285
A
very informative website including information on many disabilities
and links to other disability resources on the web. For information
on TBI, go to publications/ fact sheets/ traumatic brain injury
for a concise summary of TBI as it affects children and youth.
The
National Pediatric Trauma Registry was established in 1985 to
study the etiology of pediatric trauma and its consequences.
This
website contains more information on TBI research, prevention,
and resources.
The
CDC’s site provides statistical information about TBI, as well
as a link to view or order their free publication "Facts about
Concussion and Brain Injury," a summary of mild brain injury
with sections specifically about kids.
This
fun, educational site is maintained by Eric H. Chudler, Ph.D.
and has been created for all students and teachers who would
like to learn more about the nervous system. Enjoy the activities
and experiments on your way to learning more about the brain
and spinal cord.
This
site provides extensive information about the brain and its
disorders, and provides access to a variety of free publications.
Under the "Web Resources" section, go to “Brainy
Kids Online” to access activities for younger children,
puzzles, and lesson plan suggestions.
This
site includes a TBI chat room, links to personal TBI survivor
web pages, and links to other good information.
Click
on the "Special Education" link to find information specifically
about brain injury.
The
Disability Resources Monthly (a newsletter reviewing resources
for independent living) has compiled this list of websites about
brain injury and related subjects.
The “News and Education” section offers current TBI news, the
“Research” menu provides links to information about brain injury
and MTBI (mild traumatic brain injury/concussion), and the “Tools”
section includes a glossary and pharmacology guide for help
in understanding medical or rehabilitation records.
this
site publishes practical, informative, and affordable materials
on brain injury in children, youths and adults. Their audience
includes families, persons with brain injuries, health care
professionals, rehabilitation specialists, educators and community
staff. There is a monthly
special, offering discount pricing on a select publication.
Visit their links
page for an extensive listing of informative websites.
Provides
information about assistive technology devices and services,
funding for devices and services, advocacy services, statewide
initiatives and activities, and assistive technology centers.
This site provides information about the Assistive Technology
Center at Signal Centers in Chattanooga.
Find
out about this facility for assistive technology in Knoxville.
Learn
about the center for assistive technology in Jackson.
Find
out about the assistive technology center in Nashville.
Provides
Information on Education, Advocacy and Support
•
BRAIN INJURY RECOVERY NETWORK
http://www.TBIRecovery.org
Support Line: 877.810.2100
Their
goal is to see that victims of brain injuries are given every
chance possible to recover. They provide practical, actionable
advice from people who have suffered through the same experience.
Suggested
Reading
The
following publications are recommended for families and
professionals interested in learning more about supporting
students with traumatic brain injury.
•
An Educator’s Manual: What Educators Need to Know about
Students with Brain Injury (2000)
Ron Savage, & Gary Wolcott (Editors)
Washington,
D.C.: Brain Injury Association, Inc.
HDI Publishers:
800.321.7037
http://www.BrainInjuryBooks.com
From
HDI Publishers catalog: The third edition of this acclaimed
book is an essential tool and practical resource for educators,
classroom teachers and parents working with students with a
brain injury. Experts in special education lend insight and
information useful in meeting the needs of students with brain
injury. This book offers an overview of the effects of brain
injury from education perspective with guidelines and standards
for students with brain injury.
•
Changes in Self Awareness Among Students with Brain Injury
(1999)
McKay Sohlberg, Bonnie Todis, & Ann Glang
Lash
& Associates Publishing/Training
919.562.0015
http://www.LAPublishing.com
From
Lash & Associates catalog: When the student is unaware of changes
in abilities, it is difficult for educators to design accommodations
and compensatory systems. This manual explains the causes of
awareness and gives practical suggestions and worksheets for
working with students in middle, junior high and high school.
•
Children with Traumatic Brain Injury: A Parent’s Guide
(2001)
Lisa Schoenbrodt (Ed.)
Woodbine House
800.843.7323
http://www.WoodbineHouse.com
From the back cover: Written by an expert team of medical and
rehabilitation specialists, a speech-language pathologist, social
workers, psychologists, special educators, and an attorney,
(this book) is essential reading for parents, but is also recommended
for professionals. A case study, parent statements, patient
assessment scales, resource guide, reading list, and glossary
round out this invaluable guide.
•
Collaborative Brain Injury Intervention: Positive Everyday
Routines (1998)
Mark Ylvisaker & Timothy Feeney
San Diego: Singular Publishing Group, Inc.
800.521.8545
http://www.SingPub.com
From
the publisher: Provides thorough coverage of cognitive, behavioral,
and communication issues applied through positive everyday routines.
Practical text that covers topics concerning both children and
adults. Includes issues associated with prefrontal injury, which
is most common in traumatic brain injury. Applicable to acute
rehabilitation, school, and vocational contexts.
•
Educational Dimensions of Acquired Brain Injury (1994)
Edited by Ronald C. Savage & Gary R. Wolcott
PRO-ED, Inc.
800.897.3202
http://www.PROEDinc.com
This book is a good resource for the special educator, speech
and language pathologist or school psychologist on specific
models and strategies to help respond to students’ educational
and lifelong needs.
•
Over My Head: A Doctor’s Account of Head Injury from
the Inside Looking Out (2000)
Claudia Osborn
Andrews McMeel Publishing
800.223.2336
From
the Journal of the American Medical Association’s review, December
8, 1999, Vol 282, No 22: Over My Head is an inspirational account
of one person’s unrelenting and courageous pursuit to cope with
life following severe traumatic injury…. Moments of humor, sorrow,
pain and frustration flood the pages and help the reader to
develop an appreciation for the challenges confronting patients
with brain injuries. Over My Head is a valuable book for those
facing a severe brain injury, for rehabilitation specialists,
or simply for those interested in a powerful story of strength
and courage.
•
Signs & Strategies for Educating Students with Brain
Injuries: A Practical Guide for Teachers & Parents (2000)
Marilyn Lash, Gary Wolcott, & Sue Pearson
Lash & Associates Publishing/Training
919.562.0015
http://www.LAPublishing.com
From
Lash & Associates catalog: This book gives a basic overview
of the consequences that brain injuries can have on a child’s
learning, behavior and adjustment in school. It explains common
changes and gives strategies for the classroom and at home.
A special section on transition strategies helps prepare the
student for moving from teacher to teacher, grade to grade and
school to school with lots of worksheets for families and educators.
•
Students with Acquired Brain Injury: The School’s Response
(1997)
Ann Glang, George Singer, & Bonnie Todis
Paul H. Brookes
Publishing Co.
*Out
of print – used copies available online
or try HDI Publishers
800.321.7037
http://www.BrainInjuryBooks.com
Card
Catalog description: When a student with a brain injury joins
a classroom, there are new challenges for everyone involved.
This book serves as both an introduction and a practical handbook
for working with children who have acquired brain injury (ABI).
Designed for school professionals, it describes the full range
of issues facing this growing student population and presents
innovative, proven strategies for improving the quality of the
school experience for all children regardless of the school
setting from special education classrooms to fully inclusive
programs. School professionals and parents can rely on this
functional book for dependable, accessible information to guide
them in their efforts to support children with ABI in the school
setting.
Tip
cards from Lash and Associates are 6 to 8 easy-to-read pages
with information for families, clinicians, and educators. They
are hands-on tools, full of current information, checklists
and suggestions. Topics include: Behavior after Brain Injury;
Special Education IEP Checklist; Teaching Strategies for Students
with Brain Injuries; Therapies in School; Neuropsychology and
School; and Going to College, and many more. Discounts are offered
for bulk orders.
•
Traumatic head injury: Cause, consequence, and challenge
(1993)
Dennis P. Swiercinsky, Terrie L. Price, & Leif E. Leaf
•
From the BIA of Kansas:
A Guide for Understanding the Causes and Consequences
of Brain Injury, and the Challenge of Rehabilitation.
Jean Bailey, Rebound, Inc.,
Kansas City, MO.
Kansas City: Brain Injury Association of Kansas
816.842.8607
or HDI Publishers
800.321.7037
http://www.BrainInjuryBooks.com
“Families
call this book one of the best resources they have after being
confronted with the tragedy of a head injury. It puts in simple,
easy to understand language technical medical information that
is so new and often frightening.”
•
When Your Teenager is Injured: Preparing for Work and
Adulthood (1997)
Marilyn Lash, Paul Kahn & Gary Wolcott
Lash and Associates Publishing/Training
919.562.0015
http://www.LAPublishing.com
This
text explains how to include transition planning under special
education. It describes how to gain work experience, apply for
a job, negotiate accommodations, and locate adult services.
•
Where Is the Mango Princess?
Cathy Crimmins
A
book written by a professional writer about her family’s experience
after her husband’s brain injury. Crimmins captures the roller
coaster of changes that her family endures and moves on to pick
up the pieces for a new life after a devastating event, while
keeping love and humor an essential part of healing. A must
read.
•
Being with Rachel, A Story of Memory and Survival
Karen Brennan
A
book written by a professional writer/professor about her daughter’s
brain injury. This book tells the story of Brennan’s twenty-five-year-old
daughter’s traumatic brain injury and her own feelings and reflections.
Beautifully written and painfully honest, Being with Rachel
is the story of a labor of love between mother and daughter
throughout a gripping recovery with a true-to-life picture of
one family’s reality after brain injury.
•
I’ll Carry the Fork! Recovering a Life After Brain Injury
Kara L. Swanson
A
book written by a survivor who accounts her recovery and offers
useful tools to help others coping with brain injury. Swanson’s
style is easy to read and humorous. She includes chapters from
professionals who have known her since before her injury, and
provides numerous helpful analogies to attempt to explain what
brain injury is really like. Between the large print and colorful
content, Swanson’s book is a page-turner that she describes
as “the book I wish I could have read when I was first diagnosed
with a brain injury.”
•
Over My Head, A Doctor’s Own Story of Head Injury from
the Inside Looking Out
Claudia L. Osborn
A
book written by a medical doctor who sustained a traumatic brain
injury. Osborn tells from a unique point of view her account
of her daily struggle for independence. Previously a doctor
who treated patients, Osborn’s adjustments to life after brain
injury explain her challenges and triumphs as a patient while
striving to regain her memory and cognitive abilities to find
and accept her “new identity.” Osborn has remained in the medical
field.
Websites
by Category
This is not an exhaustive
list of all the information available on the
web relevant to TBI issues, but rather a snapshot of those that
BIAT (with the assistance of Project Brain) has found to be
informative.
Links
to General Brain/Neurological Info Sites
•
Neuroscience for Kids
http://www.Faculty.washington.edu/chudler/introb.html
This fun, educational site is maintained by Eric H. Chudler,
Ph.D. and has been created for all students and teachers who
would like to learn more about the nervous system. Enjoy the
activities and experiments on your way to learning more about
the brain and spinal cord.
Another
fun site with lots of information on brain function as it relates
to how we learn. Sign up for the weekly newsletter.
This
site provides virtual brain dissection with photographs of the
nervous system.
This
site includes information about TBI as it relates to the following:
prevention, advocacy, education, rehabilitation, and research.
It is a helpful site for survivors, family members, and professionals
who support the TBI population. Links to state BIA Chapters
are also listed.
The
“News and Education” section offers current TBI news, the “Research”
menu provides links to information about brain injury and MTBI
(mild traumatic brain injury/concussion), and a glossary and
pharmacology guide are included in “Tools” to help in understanding
medical or rehabilitation records.
This
site provides extensive information about the brain and its
disorders, and provides access to a variety of free publications
(see the “Select Publication” drop-down menu). Click on “Brain
Kids Online” to access activities for younger children, puzzles,
and lesson plan suggestions.
This
site provides information and materials written by and for teachers,
therapists, and parents. Monthly specials are featured, offering
discounts on selected publications. “Resource
Links” for an extensive list of informative websites.
This
site provides a variety of TBI education modules, primarily
involving Mild TBI (MTBI) and concussion, including MTBI terminology,
neuropsychological testing considerations in MTBI, diagnostic
challenges in MTBI, and sports and MTBI.
Find
bibliographic and order information for videotapes, audiotapes,
and unpublished printed materials on TBI. Some printed materials
are available as downloadable files. This database is a collaborative
effort between the National Institute on Disability and Rehabilitation
Research, United States Department of Education and the Department
of Health and Human Services, Health Resources and Services
Administration, Maternal and Child Health Bureau.
Extensive
information on current TBI research, prevention, and related
information.
Another
source for information on TBI; includes a searchable database,
available publications, frequently asked questions about TBI,
and more links. Under the 'Resources -->Technical Assistance'
see the article on TBI
in School Children.
This
guide is featured on the Iowa Virtual Hospital site under the
link for Common Problems in Adults/Head Trauma. The medical
aspects of brain injury and the resulting effects are explained
in easy-to-understand language.
The
site above has been translated into Spanish and can be viewed
and printed from Adobe Acrobat Reader.
A
massive site for disability-related information. Any family
of a child with special needs should know about this web site.
It includes a searchable library of resources related to specific
disabilities, bulletin boards, chat rooms, parent support links,
and information about adaptive resources.
Family
Voices is a national grassroots network of families and others
who advocate on behalf of children with special health care
needs. Objectives include bringing the family perspective to
policy discussions and decisions, and providing a clearinghouse
for information and education about ways to assure and improve
health care for children. Find links to state Family Voices
chapters on this site.
See
the "Special Education" link to find information specifically
about brain injury.
This
site includes a TBI chat room, links to personal TBI survivor
web pages, and links to other good information.
This
website was designed for TBI survivors, their families, friends,
and caregivers, including information about "waiting" for someone
to awake from a coma. There are also personal stories and links
to related information about brain injury.
This
document outlines considerations in the selection and implementation
of assistive technology (AT) within the Individual Education
Plan (IEP), the roles of IEP team members, sample IEP goals,
and the use of AT in instruction of students with mild disabilities.
Produced
by the State University of New York at Buffalo, this site
provides assistive technology basics, tutorials, and resources.
Pediatric Occupational, Physical, Behavior, Nutrition, and
Speech & Language Therapies. Center of Development uses a
family based approach to therapy for your child. "We
want you as a family to be excited about learning more about
your child's issues and advanced treatment techniques to help
them. We focus on what the underlying cause of your child's
delays are using a holistic approach to treatment. All of
our therapists love children, and are focused on not only
what therapy interventions the child needs in therapy sessions,
but what will work in the home setting to help you as a family
carry out those techniques in your hectic daily life schedule.
We want to address all of your child's developmental needs
in the therapy session as you cannot separate different areas
of development in a child, the body and brain work as a whole
team, so we use a wholistic team based approach to therapy."
•
Centers for Disease Control and Prevention (CDC)
http://www.CDC.gov/ncipc/dacrrdp/tbi.htm
The
CDC’s site provides information on the epidemiology of TBI,
as well as a link to view or order their publication "Facts
about Concussion and Brain Injury," a summary of mild brain
injury with sections relevant to concussion in children.
CEC
advocates for appropriate governmental policies, sets professional
standards, provides continual professional development, advocates
for newly and historically underserved individuals with exceptionalities,
and helps professionals obtain conditions and resources necessary
for effective professional practice. Find out about local CEC
chapters.
The
Disability Resources Monthly (a newsletter reviewing resources
for independent living) has compiled this list of websites about
brain injury and related subjects.
ERIC
is an acronym for the Educational Resources Information Center.
The ERIC Clearinghouse on Disabilities and Gifted Education
(ERIC EC) is one of 16 federally funded clearinghouses in the
ERIC system, a nationwide information network sponsored by the
U.S. Department of Education, Office of Educational Research
and Improvement (OERI), and administered by the National Library
of Education (NLE). ERIC EC gathers and disseminates the professional
literature, information, and resources on the education and
development of individuals of all ages who have disabilities
and/or who are gifted.
This
site is a federally-supported comprehensive resource center
for maternal and child health information including information
on children and youth with special health care needs, youth
and mental health, and emergency medical services for children.
NCEMCH provides access to data, research findings, consensus
reports, and other products. The Web site enables key word searching
and contains published bibliographies.
•
National Information Center for Children and Youth with
Disabilities (NICHCY)
http://www.NICHCY.org
Voice/TTY: 800.695.0285
A
very informative website including information on many disabilities
and links to other disability resources on the web. For information
on TBI, go to publications/ fact sheets/ traumatic brain injury
for a concise summary of TBI as it affects children and youth.
The National
Pediatric Trauma Registry was established in 1985 to study
the etiology of pediatric trauma and its consequences.
Informative
website for Benjamin S. Burton, Attorney at Law. "The
disability process is a complicated and lengthy process. Currently,
the disability process starts at the local field office where
limited personal and medical information is collected. The
field office then sends the disability file to a Disability
Determination Service (DDS). If the claimant is denied at
the initial level she/he will be allowed to file for a reconsideration
of the initial decision. If reconsideration is requested,
the disability file will be sent back to DDS for a second
decision. If the claimant is denied at the reconsideration
level, she/he can request a review of their file before an
Administrative Law Judge."
Further good information is available at his site. This link
is a suggestion for information, not an endorsement by BIAT.
This
site provides principles and products for supporting people
with primarily cognitive difficulties.
This website provides descriptions of government programs and
legislation, and includes contact information for most departments
and agencies. Topic include the Americans with Disabilities
Act, Social Security, Medicare, Temporary Assistance for Needy
Families, Housing Assistance Options, Special Education, Employment,
Voting Rights, and Transportation and Travel. The information
may also be read and printed with Adobe Acrobat Reader.
Parents,
advocates, educators, and attorneys visit this site for accurate,
up-to-date information about advocacy for children with disabilities.
